This is my first personal post on our new website. I am overwhelmed by the response to the site and I hope that means we are on the right track. The site is a work in progress. I will share stories of some amazing women as we go forward. Thanks for sharing. And please let me know how to make the site better.
Gene Sequencing Underway
The research team is busy. Dr. Birrer reports that the sequencing is underway. The lab could be reporting some of their findings in the next month or so. I am hoping to see some major breakthroughs, but I know that is a long shot. However, this is just the beginning. There have been so many breakthroughs for breast cancer, melanoma and leukemia, why not GCS? But there will be no breakthroughs unless there is research and focus. We know of no other lab that is focused on GCS. It is my hope that the GCS Community will support this research as there is no other lab looking for a cure to help us.
Consults & Future Clinics – Dr. Birrer
Several women have asked me how to obtain a consultation with Dr. Birrer at Mass General. Dr. Birrer advised that you contact Karen Broderick at his office to set up an appointment. Dr. Birrer is considering setting up a clinic for GCS patients. When the clinic is launched, I will broadcast the news on the website. I am very excited and encouraged that Mass General is focusing on this cancer. The researchers are so dedicated.
Thank you, please spread the word
Thank you for subscribing to this site and helping us to grow this project. If you know anyone with GCS, please make them aware of this project and that there is hope and help available for them.