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Dealing with GCS diagnosis

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 ann
(@ann)
Posts: 65
Trusted Member
 

Lisa,

Sorry to be so long responding!! I had a friend doing a job interview today, and I was helping her get organized!

I live in central Mississippi - near the capitol, Jackson, so it would be way out of your way! Where in Kentucky are you going? I have relatives there! Maybe I'll invite myself for a visit!

Hope things are going well for you!!

Ann

 
Posted : 15/04/2019 1:17 pm
(@lisa5391)
Posts: 24
Eminent Member
Topic starter
 

Hi Ann,
Round #4 done. 2 to go!
The pain gets worse each time. Hate having to take Oxy but that’s the only thing that touches the pain. I get down when this pain takes over.
I’m puttering in the camper looking forward to our trip this summer. In Kentucky, We were going to go to Churchill Downs and a horse museum near there! I love horse racing! We’ll have to touch base closer to departure time to see how close we might be to you!

 
Posted : 22/04/2019 2:16 am
 ann
(@ann)
Posts: 65
Trusted Member
 

Hi, Lisa! Sorry to be so long responding! I have a flower business on the side. We had a wedding this weekend that took a lot of time - as usual!

My family is in the Lexington area. My grandfather was actually a vet for two horse farms in that area - he worked there when the farms were just starting! Watching the Kentucky Derby is a deep-rooted activity for my family even today! We always set aside the first weekend in May to watch!!

Let me know when you are headed that way! I will see if I can get up there to meet you. I do work some during the summer; I am a teacher.

Take care!

Ann

 
Posted : 30/04/2019 11:46 am
(@lisa5391)
Posts: 24
Eminent Member
Topic starter
 

Hi Anne,
Yesterday was my 5th treatment! One more to go. I e also been getting shots in my knees for the arthritis. Hoping for some relief! The knee pain from the chemo is with me all the time now, not just a couple days after chemo. I take Percocet more than I’d like but it’s the only thing to relieve the pain! I have been working a couple weeks a month. Usually can’t work at all the week after chemo. I come home and take a Percocet and ice my knees and feel a little better!
My scan and check up with Dr Arend st UAB is June 26. I sure hope the carboplatin is doing the job and I’m clear!
Our trip is scheduled for July 27 and I think we’ll be in Lexington on July 29. I’ll double check with my husband!!
Hope all is well with you!!

 
Posted : 10/05/2019 1:17 am
 ann
(@ann)
Posts: 65
Trusted Member
 

Lisa,

Good news!! Only one more treatment to go!! Actually, UAB is only 3 hours from me, but I know that time is precious as you wait for results. I have a scan and exam on June 3-4. I always get anxious as the time draws near!

I will check with my family and see how the July date works for them! I have already told them I was hoping to meet you. They were very supportive of my coming and my reason for coming!!

Look forward to hearing that you are finished with this round of treatments!!

Ann

 
Posted : 15/05/2019 4:18 am
(@lisa5391)
Posts: 24
Eminent Member
Topic starter
 

Hi Ann!
Sorry I haven’t replied for a while. Felt pretty bad after my last chemo, but thank goodness it’s over now!! Now, I’m praying for a clear scan on June 26!
How did your scan go? I think you said June for your next scan?
So, we leave on July 27. We’re staying at the Ft Knox Air Force campgrounds that night and on July 28, we will be going to the Lexington Horse Museum and then to Church Hill Downs for dinner and simulcast betting! Leaving on July 29 for Waco TX. I’m a fan of Fixer Upper!
I started physical therapy this week to try to regain some strength for our trip. The pain has been so bad I’ve been very inactive.
Hope you are doing well!
My email is lisa5391@outlook.com
You can email me and maybe we can meet up the evening of July 27 or somewhere on the 28th
If that doesn’t work out, I’d love to continue emailing with you. I have trouble logging on to GCS Project from my phone.
I think I told you about the MMMT survivors group on Facebook. It’s a wonderful source for support and encouragement if you do FB!
Lisa

 
Posted : 12/06/2019 1:32 am
(@margret)
Posts: 21
Eminent Member
 

Dear Lisa
Do you will have radiotherapy after chemo?
Greatings from Switzerland Margret

 
Posted : 13/06/2019 10:00 am
(@lisa5391)
Posts: 24
Eminent Member
Topic starter
 

Margret,
Dr Arend said if there are still cancer cells showing in my scan, I might have done brachytherapy. She said she’s not a big fan of radiation. I’m hoping it’s not necessary as it looks like sometimes bowel problems can pop up after radiation.

 
Posted : 13/06/2019 1:11 pm
 ann
(@ann)
Posts: 65
Trusted Member
 

Lisa,

Glad to hear from you! Will be praying for the physical therapy!

Sent you an email about your trip!

 
Posted : 14/06/2019 1:18 am
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