Reply To: Please share your experiences with MMMT/Carcinosarcoma
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Thank you so much for sharing your incredible story. 17 hours of surgery followed by 12 hours of surgery! And the brutal chemo regimen. You must have been so healthy to tolerate so much. It sounds like you had fantastic care at Dana Farber. I think that really speaks to the need for GCS patients to seek care at a major cancer center with experience and expertise in current treatments as well as awareness of clinical trial in the pipeline.
Based on your experience, I would like to recommend your treatment team at Dana Farber. We are planning a trip to the northeast in January to visit Memorial Sloane getting and Dana Farber. We would like for doctors who deal with GCS patients to talk to each other and share results of treatment and clinical trials.
Best to you and please stay in touch. It sounds like you know to stay ever vigilant with this cancer. Congratulation!