Reply To: Please share your experiences with MMMT/Carcinosarcoma
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If I were in Wisconsin, I would head over to Mayo for a second opinion. It is so important to feel confident in your treatment, regardless of what protocol your current doctor has you on. If you can, try a doctor or a treatment center with lots of experience in GCS. Mayo would qualify–and there may be other folks on this list who know of doctors who are closer to you.
As far as statistics go–this is a “rare” cancer–and our oncologist is always saying that Karen is a statistic of one–she makes her own curve! She is Stage 4 uterine carcinosarcoma, diagnosed in 2011. So I wouldn’t go searching the internet for statistics–I would spend that energy finding a second opinion! Cheers–Suzanne