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Reply To: NCT02834013 Nivolumab and Ipilimumab in Treating Patients With Rare Tumors

GCS Project Home Forum Available Clinical Trials NCT02834013 Nivolumab and Ipilimumab in Treating Patients With Rare Tumors Reply To: NCT02834013 Nivolumab and Ipilimumab in Treating Patients With Rare Tumors

#4967
Diane Redington
Keymaster

Hello Helena,
Your mother was hit twice? That is not fair! Has your mother had genetic testing?

My experience with clinical trials is very frustrating. My experience with the major cancer centers is that they are aware of the clinical trials they are conducting but lack knowledge about all the clinical trials available. You will be referred to clinicaltrials.gov. You may or may not find a trial that admits GCS patients. But how do you know if the trial is a good one? We rely on our oncologists to direct us in the right direction.

We at the GCS Project are going to encourage women who have been or are in clinical trials to share their experiences. The more information we have, the better decisions we can make. I start a clinical trial in the next week or so. My intent is to document my trial experience and hopefully gain some information to share with other women.
Please let us know about your experience with Dr. Holcomb and his recommendations.

Best and sending lot of positive thoughts to you and your mother.