Reply To: Surveillance after NED
I heard back from one of our consultants who noted that the different options you mentioned are considered to be within the standard of care and are considered reasonable: 1) regular scans or waiting to scan when symptoms occur; 2) having tumor profiling (Next Generation Sequencing) done upfront or at the time of recurrence. As I mentioned earlier – and as Ann and Lisa wrote above – I think it is important to get a second opinion from an experienced physician when dealing with carcinosarcoma because of its rarity and aggressive nature. The physician you see for the second opinion may concur with the original treatment plan (and give you peace of mind) or provide a different treatment plan. But it’s good to have this discussion.
Let us know how things go.