Reply To: Specialist in Southern California
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Hi Rachel, Lori and Katherine,
I was diagnosed August 2016. I had a hysterectomy at Hoag Hospital in Orange County and then decided to go to a Comprehensive Cancer Center for treatment. There are 4 that I know of in Southern CA: UCI, UCLA, USC (Keck) and City of Hope. I had treatment at UCI (6 cycles of Carbo/Taxel) but was unhappy with my gyn/onc there and transferred to Dr. Cohen, gyn/onc at UCLA September 2017. As far as I know, he is not a Carcinosarcoma “expert”, but he has treated others with this disease and seems to be knowledgeable. The cancer came back this past December and I decoded to go for second opinions at City of Hope and USC Keck as well as Memorial Sloan Kettering in NY. I really liked Dr. Cristea at City of Hope, but the commute was difficult. All three second opinions agreed with the treatment recommended by Dr. Cohen which is 6 cycles of Carbo/Doxil. I decided to stay with UCLA since they have a satellite office in Orange County where I can receive the infusions. I also consulted with Dr. Konecny at UCLA and found him very knowledgable regarding clinical trials and treatment options. Genome analysis of my tumor was performed at Foundation Medicine, unfortunately there were no other therapies or clinical trials for the biomarker or genomic make-up of the tumor. Hope this helps. Please keep me updated on your progress and research. Best of luck.