MMMT

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    • #8299
      Jo Stephenson
      Participant

      my sister was diagonsed with MMMT two weeks ago. Doctors told us that it was a late stage.
      History : She was admitted to hospital for retention of urine in both kidneys . Both kidneys were enlarged. Doctors were able to save one kidney by putting in a stent. Unfortunately one kidney did not function anymore.
      She was subsequently treated for bowel obstruction.
      In the meantime all the test result came and the diagnosis was MMMT and that the cancer had spread into her abdominal cavity and as such there was nothing they they could do.No chemo, no radiaton,no hysterectomy.
      this is all so new to us. Any help or info would help us. My sister is only 62 years old

    • #8313
      Lisa Myers
      Participant

      Hi Jo,
      So sorry to hear about your sisters diagnosis. Please think about a second opinion. And look into where the experts are and who has experience treating this cancer. There are several videos on this site that I would encourage you to watch. I took the time and expense to travel to University Alabama Birmingham and they got me in within a week and admitted me on the spot.
      Please keep us updated on your sisters progress and I wish you the best.

    • #8319
      Lisa Myers
      Participant

      Jo,
      GCS Project is offering video consultations with Dr Birrer!! Please check it out!!

    • #8322
      ann
      Participant

      Jo, I am so sorry to hear about your sister, but I, too, encourage you to seek help from Dr. Birrer. He was a great source of encouragement to me! I consulted with him but took treatments at home where my support system was. My local doctor was willing to work with Dr. Birrer. If you are not satisfied with the doctor’s diagnosis where you are, find another doctor! It is worth the time and effort! This is a mean disease. Don’t give up without a fight no matter how dismal it seems!

      Ann

    • #8354
      Jo Stephenson
      Participant

      thank you Lisa and Ann for your support.

      We will be getting a another opinion but all info that we have got so far from the doctors and cancer specialist is the same that chemo, radiation and hysterectomy is not an option as her cancer has progressed way to far. She is very weak at the moment and will only be released once she can eat. At the moment she is not able to keep food in. Just vomiting due to obstruction in the bowel. Since only one kidney is functioning , doctors have said that chemo is high risk.
      How can a normal healthy woman not have realized that she had cancer in her uterus. No symptoms, no signs. And now 4 weeks later she is so weak that she can’t even feed herself properly. Don’t regular checks with your Gynaecologist and regular pap test detect this cancer.

    • #8373
      Lisa Myers
      Participant

      Oh Jo, I am so sorry to hear that your sister is so weak and not well now. I can’t answer your question but I did get regular paps and examinations (latest in June)and my cancer was not detected until I started spotting in a December and a d&c was done. I think many uterine cancers can be eliminated with a hysterectomy but Carcinosarcoma is a different beast all together.
      I wish you and your sister the best and I hope she’s not suffering. This must be so tough for you and I’m keeping you in my thoughts and prayers.

    • #8395
      Jo Stephenson
      Participant

      Thanks to all you wonderful ladies for offering a support platform with lots of info on this beast of a cancer.

    • #8433
      ann
      Participant

      Jo, I am so sorry about your sister. I think that is one of the hard things about cancer – by the time you have symptoms, the usually the cancer is well established. They have made so many advances in treating cancer. I am thankful that a group of doctors is committed to researching this cancer, too!

      Keep us posted on your sister and how you are doing, too!

    • #8509
      denne
      Participant

      Dear Jo,
      I have just read about your sisters situation and I am just so sorry to hear this news. Have they been able to do anything to keep the bowels open? It is just so hard to believe and unthinkable that a cancer could get this bad with little or no symptoms. My prayers and thoughts are with you and your sister. Im hoping to hear that she has stabilized and is able to try chemo. there are just no words!
      sincerely…
      Linda Denne

    • #8593
      Jo Stephenson
      Participant

      My dearest sister passed away on April 9th 2019. From the time she was diagnosed to her death was 7 weeks.

      The doctors could not do anything. Her bowels were completely blocked due to this cancer which had also spread extensively to her peritoneum

      A sad day for me. We were hoping and praying but it was not to be.

      Jo

    • #8596
      ann
      Participant

      Dear Jo,

      I am so sorry to hear of the death of your sister. It is always hard to lose a part of your family. I will be praying for you and your family in the days to come!

      Ann

    • #8599
      Kathy
      Keymaster

      Dear Jo,
      We are very sorry to hear of your sister’s passing. We at The GCS Project offer our condolences and prayers of strength and hope for you and your family. If it would be helpful to talk, you can email me through our contact page.
      Sincerely,
      Kathy Wilt
      The GCS Project

    • #8674
      Lisa Myers
      Participant

      Dear Jo,
      I am so sorry to hear of your sisters passing. I can’t inagibe the pain you must feel. I will keep you and your family in my prayers.
      Lisa

    • #8675
      Lisa Myers
      Participant

      Dear Jo,
      I am so sorry to hear of your sisters passing. I can’t imagine the pain you must feel. I will keep you and your family in my prayers.
      Lisa

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