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My uterine carcinosarcoma

GCS Project Home Forum Share Your Story My uterine carcinosarcoma

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    • #6844
      Betty Halpern
      Participant

      Had small amount vaginal bleeding Feb. 2018. Saw my gyn in March. 1 week later was diagnosed after D and C with hyseroscopy and biopsy. Had my surgery University of Pennsylvania Hospital. High grade stage 1a. Started my chemo, carboplatin and Paxil last week. Had 5 days joint and muscle pain starting 24 hours after chemo and prednisone, i took Claritin 5 days with the Nuelasta. And had no problems. Will get radiation after chemo. It looks like there is a high chance of reoccurance with UCS. Will have to take this 1 day at a time

    • #6854
      ann
      Participant

      Yes, one day at a time is the only way to deal with this cancer and treatments! Thank you for sharing with us!! Keep us posted on how you are doing! You are part of our family now!

    • #6928
      Betty Halpern
      Participant

      2 weeks after my first round of chemo my hair started falling out. I shaved it all off and bought a wig. It is uncomfortable but I hope I get used to it.

    • #6930
      Betty Halpern
      Participant

      I am an RN too. It seems like a lot of RN’s have this or is it just RN’ who have found this web site?

    • #6933
      Alicia Buckingham
      Participant

      Hi Betty:

      Have you had a second opinion on radiation? I would recommend doing so, especially from a doctor who specializes in GCS. My mother had radiation right after her hysterectomy, and about 4-5 years later, one of her ureters had become constricted, causing bleeding while urinating. She had to have a stent put in place (and changed every 3 months), and the doctors at Yale believe that the constriction was due to the radiation (yes, even years later). In January this year, she was hospitalized for what doctors believed was related to the radiation as well – she had developed a fistula in her bladder and her recturm, causing bleeding and blood clots in her urine again. When she was diagnosed in 2011, there were even fewer doctors specializing in GCS as there are now. Maybe radiation is the best option; though I would definitely recommend a second opinion from a specialist. We worked with Dr. Santin at Yale, and my mother thought very highly of him. Best of luck to you. Stay positive, and never lose hope. Ever. Sending love and prayers your way.

      Alicia S. Buckingham

    • #6935
      ann
      Participant

      Losing my hair was one of the hardest parts of the chemo to me! I cried when it first started going, then took a breath and moved on!! I had a wig, too, but I only wore it when I went out in public. I also got some cotton caps that I wore when I was at home. They were much more comfortable!!

      I am a teacher not a RN!!

    • #6942
      Betty Halpern
      Participant

      Thanks for the advice Alicia.

    • #7026
      Betty Halpern
      Participant

      Found out wig cap really helps for wig discomfort. Reciever Pepcid, dexamethasone, Benadryl. And also I pre chemo and an having no side effects. Also taking Claritin for 5 days starting day of Neulasta with no side effects from that. I am one lucky girl.

    • #7027
      Betty Halpern
      Participant

      Ann thank you that was helpful.

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