Specialist in Southern California

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    • #6251
      Rachel Walker
      Participant

      Hello. I wanted to see if there is a GCS specialist in Southern CA. My mother is currently receiving treatment for a diagnosis in February; however, our options are limited because of her insurance network (Kaiser SouthenCA). I am trying to see if there are any other options for her. I appreciate any advice. Thank you so much ~ Rachel

    • #7749
      Lori Jones
      Participant

      Rachel, I also came to this website looking for any specialists near Southern California as well, as I was diagnosed with MMMT in June of this year. My guess is that in order to be seen by a carcinosarcoma specialist, we would have to take a long trip to either Connecticut, Missouri, or Alabama to be seen by a specialist… Sheesh!! Prayers for your Mom!!

    • #8264
      Katherine Kryske
      Participant

      Hi Rachel and Lori,

      I’m also looking for and MMMt Specialist in Southern California. My mother had Kaiser for her surgery chemo and radiation. Then we transferred to Cedars Sinai, however I’m concerned because I don’t think they have a lot of experience with MMM specialist in Southern California. My mother had Kaiser for her surgery chemo and radiation. Then we transferred to Cedars Sinai, however I’m concerned because I don’t think they have a lot of experience with MMMt. Today they said that they don’t do scans unless there are symptoms. But I have heard that other people get scans every six months. If anyone knows of someone in Southern California with experience Treating mmmt, please let us now ! Thank you and good luck to all. Katie

    • #8633
      Lynn Pash
      Participant

      Hi Rachel, Lori and Katherine,
      I was diagnosed August 2016. I had a hysterectomy at Hoag Hospital in Orange County and then decided to go to a Comprehensive Cancer Center for treatment. There are 4 that I know of in Southern CA: UCI, UCLA, USC (Keck) and City of Hope. I had treatment at UCI (6 cycles of Carbo/Taxel) but was unhappy with my gyn/onc there and transferred to Dr. Cohen, gyn/onc at UCLA September 2017. As far as I know, he is not a Carcinosarcoma “expert”, but he has treated others with this disease and seems to be knowledgeable. The cancer came back this past December and I decoded to go for second opinions at City of Hope and USC Keck as well as Memorial Sloan Kettering in NY. I really liked Dr. Cristea at City of Hope, but the commute was difficult. All three second opinions agreed with the treatment recommended by Dr. Cohen which is 6 cycles of Carbo/Doxil. I decided to stay with UCLA since they have a satellite office in Orange County where I can receive the infusions. I also consulted with Dr. Konecny at UCLA and found him very knowledgable regarding clinical trials and treatment options. Genome analysis of my tumor was performed at Foundation Medicine, unfortunately there were no other therapies or clinical trials for the biomarker or genomic make-up of the tumor. Hope this helps. Please keep me updated on your progress and research. Best of luck.

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