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ann

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Viewing 6 posts - 1 through 6 (of 63 total)
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  • in reply to: Dealing with recourrence and lack of treatments #9786
    ann
    Participant

    Maria,

    I wish I had some words to help & encourage you! It is a hard road!

    Ann

    in reply to: Chemo, Round Two. #9655
    ann
    Participant

    Charmaine,

    I am so sorry to hear about your re-occurrence of the cancer. Thank you for the link to your blog. I enjoyed reading it and getting to know you a little better. I believe sharing our experiences makes a difference for everyone dealing with this cancer.

    Wishing you the best during your treatment!

    Ann

    in reply to: Follow up control #9476
    ann
    Participant

    Margret,

    We did not discuss further options of treatment if the tumors returned. I guess partially because it would depend upon where the tumor was located. I, too, was told that if the tumors returned they would be more aggressive. That is what makes this cancer so hard to combat! My goal in getting the scans so often was so that we could catch the tumor early if the cancer returned.

    I know this is a hard time! It is also hard to care for a parent – knowing what is best for them. I took care of my parents for 10 years. It is hard to make those judgments for someone else wanting to do what is best for them. I was constantly second-guessing myself. I finally realized all I could do was the best I could do. I might have made mistakes, but second-guessing myself was of no value – you can’t change a decision once it is made. You just have to move forward knowing you did the best you could!

    Ann

    in reply to: Radiotherapy/Brachytherapy/Protontherapy #9475
    ann
    Participant

    I did not have any of those. My doctor did not recommend radiation.

    in reply to: Dealing with GCS diagnosis #9474
    ann
    Participant

    Lisa,

    Glad to hear from you! Will be praying for the physical therapy!

    Sent you an email about your trip!

    in reply to: Follow up control #9416
    ann
    Participant

    My doctor recommended having one every three months for six months. He then recommended going to six months for two scans After that it was to be once a year. I was not satisfied with that – I did not want that cancer to come back and not get it early. I got CT scans every three months for the first year. I am now getting them done every four months through this second year. I will be at two years in October. I expect to go to the six month scan once I pass 2 years cancer free. Having scans that often has helped my peace of mind which is why I did that. I checked with the doctor and technicians about the radiation. They felt comfortable that I was not getting too much radiation from having the scans so often.

    I am not recommending this course – I am just telling you what I did/am doing concerning scans. I chose to have the scans that often for my peace of mind! I do not know what is the right or wrong course concerning scans; I only did what I knew I wanted to do!

    Let me know if I can be of any other help!

    Ann

Viewing 6 posts - 1 through 6 (of 63 total)