Forum Replies Created
November 9, 2018 at 3:40 PM in reply to: can you share your experience with ifosfamide? can we have a general discussion? #7693
No, it was the Taxotere that did me in this time. I was in La La land for about 3 days with it (and the Ifex). My scan was good. No sign of any new disease and 1 “site” is stable. Oncologists says it’s a great scan, and she’s encouraged. I started Avastin. No side effects so far and blood pressure is under control.October 19, 2018 at 8:31 AM in reply to: can you share your experience with ifosfamide? can we have a general discussion? #7584
Hi. I just finished 7 rounds of Ifosfamide. Six with Paclitaxel and one with Taxotere. Oncologist wanted me to do 1 more but the Taxotere did not agree with me, so I called an end to it. The Ifos did keep my tumors stable, and on the last scan it showed an improvement. I will have a CT scan next week to see where I am now, after the Taxotere. Now we will try to move on to Avastin, although it is not approved for my Uterine MMMT. The insurance co had approved it for once, so hoping they will approve again. I was Stage 3C2 at dx, and recurred within 6 months after first line chemo of Carbo/Paclitaxel.
To Hawej, Have you been able to find out if Dr. Powell’s office has been able to fix this? Can I now call for an appointment and see him if I self pay?
Same here. Stage 3A Breast cancer some years ago. Now Stage 3C2 Uterine Carcinosarcoma. Not related. First line chemo Paclitaxol and Carboplatin. Didn’t work for long. Now have Metastatic UC in abdomen. Halfway through Ifosfamide and Paclitaxol. Last CT showed no to little change. Next CT soon.
No, this is not acceptable, but I believe the problem may be with Washington University’s policy rather than Dr. Powell. I also was told that another lady had the same problem with his office a couple years ago, and never got to see him.
I consider my self fortunate, in that when I related this to my current GYN Oncologist, she said that she knew Dr. Powell, and would call him herself. Thankfully, because of her, they have decided to change my Chemo to Ifos, and I’m waiting for my insurance to approve it.
However, I don’t give his office a pass on this, and it should be addressed. Had my current Oncologist not known him personally, I would not have had the benefit of his input. I do hear he is a good, and kind doctor, but his office staff (or at least the one I talked to) needs to be coached on compassion. I was told by the lady that I talked to that ” if they did this for one person, they’d have to do for everyone”, meaning accept self pay. Please understand this was only a request to set an appt. for a consultation, and not for him to be my Oncologist, as I know my insurance would not cover him.
However, I don’t see how the doctors in the GCS group are going to find out about us GYN Carcinosarcoma patients, and gather information, if we are unable to even confer with one of them.
Thanks. I am sure that my Oncologist took this up with him too, although I hope you will follow up, and please let me know what he says.
Brenda RogersJanuary 2, 2018 at 6:29 AM in reply to: Dedicated Carcinosarcoma Clinic at the University of Alabama Comprehensive Cancer Center #3866
Admin note: Reply posted by user @Brenda R
Thank you so much for this information. I will have to see what insurance they accept.