Forum Replies Created
I was able to talk with Dr Powells office at length about your experience. You are right the problem is with Washington University policy. I talked with Dr Powells nurse Tracey and the practice manager Tina Caruso. They were very apologetic and will be relaying your experience to Dr. Powell.They currently have a team looking into all the insurance issues affecting their patients. They know this is a huge problem and are trying to come up with solutions. This doesn’t make things any easier for you and other patients with such a devastating diagnosis. Tina assured me she will be coaching and retraining their schedulers. She will also make them aware of the GCS project.We are so sorry that you had such a bad experience. The GCS team is committed to following up and hopefully making this process run much smoother.Tina Caruso the practice manager gave me her number and asked that I have you call her directly to see what else she can do to help. Her number is 314 747 3609. Also, if you would like to call me you can email me at hawej27@gmail and I can give you my number and we can talk. I was with my sister for the last 3 years. We went to almost every major cancer center in the country. We met with many experts.If I can answer any questions or help in any way I would be happy to do this and would love to talk with you about this.Again, I am so sorry for your experience and know this is the last thing you need right now. Wishing you all the best. Jayne Hawe (Dianes sister)
This is Jayne Hawe (Diane’s sister). This is very upsetting for us at the GCS team to hear. I am in the process of following up with Dr Powell’s office. If you could send me your last name I will discuss your specific experience with them. I was with my sister in December when we visited Dr Powell in St Louis. Our experience with him was very positive. He has significant expertise in GCS and was very interested in supporting research, and importantly, in supporting patients with carcinosarcoma. I am so sorry for your experience, this is not Ok.
Thank you for letting us know and I will get back to you as soon as I hear back from them. I will be persistent.
Jayne Hawe, Member of the GCS Board of Directors
We all know that the treatment and cures will be found in clinical trials. I am looking for a clinical trial that is focused solely on carcinosarcoma. Is anyone currently enrolled in a clinical trial anywhere in the world specifically targeted to carcinosarcoma. There are many clinical trials out there for ovarian and uterine cancers. I am hoping to find one for carcinosarcoma. Thank you so much for responding. Jayne