I was diagnosed with MMMT Stage 3A in July 2015. I had a TAH Total Abdomiinal Hysterectomy around August of 2015 then 6 weeks of external radiation starting in October of 2015.
In January 2016, I had my port put in and started chemo. I finished in August of 2016.
As of 2019, my PET scans – done every 6 months – have been fine.
The only thing I wished I had NOT done was radiation. It has caused chronic diarrhea that has made life very difficult. I have to wear Depends and always have them with me along with a pack of Cottenelles and a pair of jeans. Too many accidents where I have had to miss appointments either because I can’t get out of the car once I’ve arrived, or I can’t leave the house because I’m glued to the bathroom.
Yes, I’m, alive but I also lost my Mom in 2017 , then my Dad in July of 2018 the my dear husband of 31 years the month after Dad. I am not enjoying life much so, for me, I’m ok if it comes back as I won’t do any treatment.
For those of you that are going through MMMT, please remember everyone and every body is different. I wouldn’t pay much attention to statistics that any of the websites provide.
Enjoy your life, family and the gifts God has given you. You are precious and those that love you will lift you up.
The GCS Project is dedicated to finding a cure for Gynecological Carcinosarcoma (aka MMMT), providing current scientifically valid information, and offering a place for the community impacted by this cancer to share stories and hope.