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We did not do anything preventively and Karin did not have any symptoms until the start of the 6th cycle (week 16) and her symptoms are tingling in her toes and pads right below her toes.
We were at MD Anderson in Houston this week for a second opinion and read about the use of Scrambler Therapy in which they have had promising results in decreasing pain and regaining sensation. See link below for podcast interview.
Attached is a PDF of the Quest Diagnostics Brochure. Not sure if it can be viewed on the discussion board but thought I would try.
StephanieAugust 16, 2017 at 11:48 AM in reply to: Please share your experiences with MMMT/Carcinosarcoma #3908
I am sorry to hear about you challenges. Hang in there and so happy the blood cultures were negative:) Karin had 18 weeks of Chemo and developed some neuropathy in the bottom of her feet near her toes towards the end of treatment. Gentle foot massage (I use peppermint foot lotion) appears to give her relief and I think keeping her body moving helps as well. I think there are some precautions with massage while you are on chemo so please check with your clinical team first.
I hope this helps and your will be done with chemo before you know it, StephAugust 14, 2017 at 11:33 PM in reply to: Please share your experiences with MMMT/Carcinosarcoma #3898
Bless you for starting this project since it has been a godsend of information for me as I help my life partner (Karin) navigate her treatment options. She had a tumor removed last week in her left pelvis that developed towards the end of of 18 weeks of Carbo/Taxol after a full Hysterectomy in early February 2017 (we will share her full story soon).
She is currently being treated at Mayo Clinic Jacksonville and her tumor samples are being sent today to Foundation Medicine for Genetic Testing. While we wait on the testing results (I’ve been told 4-5 weeks), we are aggressively seeking second opinions for her next treatment options. We are scheduled to see Dr. Robert Coleman at MD Anderson in Houston next week and I contacted UAB this morning to schedule an appointment with Dr. Birrer that is pending.
Based on your experience and clinical knowledge can you offer any other opinions/options that we should consider? Also, I just posted information about using IBM Watson for treatment planning and I am curious of your thoughts on that as well since what I have read so far is encouraging.
I hope that you continue to feel and do well. I can not thank you and your family enough for starting this initiative. Moving forward, I am committed to help drive our friends and family to the GCS Project for donations to this research on GCS.
Thank you, Stephanie and Karin
Has anyone considered or had experience in using the testing offered by Quest Diagnostics for treatment plan(s) and comparison of second opinions?
Additional information from brochure in link
What is Watson Genomics from Quest Diagnostics? Watson Genomics is ground-breaking cancer diagnostics that combines: Quest’s state-of-the-art tumor analysis, IBM Watson’s cognitive computing, and Memorial Sloan Kettering Cancer Center’s expertise, with Research support from The Broad Institute of MIT and Harvard Which patients may benefit from this test? Watson Genomics from Quest Diagnostics is for cancer patients with a solid tumor, and may especially benefit patients with: Certain rare tumor types, Tumors of unknown primary origin, Metastatic or locally advanced cancer, Tumors with no actionable mutations found through guideline-driven testing
How the test works 1. Quest Diagnostics analyzes the genetic mutations of your patient’s tumor biopsy. 2. IBM Watson compares the mutations against leading science and therapies. 3. Quest medical experts review, validate, and report the results to you with insight into personalized, targeted treatment options and clinical trials that may be appropriate. 4. You and your patient develop a targeted treatment plan that is tailored to him or her.
Thank you, Stephanie and Karin