Hi Bernice, I just found this website and I cannot believe how similar our stories are. I was also diagnosed in March and I also thought that I had IBS. I just tuned 59 years old I live in Kernersville, NC. I was initially referred to a gastroenterologist who saw me and immediately ordered a CT scan. The scan showed a large mass and I was then referred to Dr. Skinner at Novant. I had a total hysterectomy and appendectomy the first Friday in n April and have been going through 18 weeks of carbo/Taxol. I am responding well to the chemo but am concerned about this type of tumor and it’s reccurance rate. I am a candidate for a PARP inhibitor after initial treatment is done.
Please send me a follow up email! I would love to connect with you!
Blessing to you!
The GCS Project is dedicated to finding a cure for Gynecological Carcinosarcoma (aka MMMT), providing current scientifically valid information, and offering a place for the community impacted by this cancer to share stories and hope.