I have been on this site since August of 2017 and am happy to say that I'm still here. Dx was 1B and a cure was hoped for for but 7 months later the cancer showed up in the lung. A regiment of Carboplatin had not worked for me. I started ifosomide in May and scan showed only a slowing in growth... 20 tumors were assaulting my lungs! I put my affairs in order and lived life big with my daughters and husband. Then suddenly the cancer responded to the treatment!! I have managed to tolerate Ifos every 3 weeks since June (and I think I've done a record amount of chemo and survived intact at least)
The cancer is stable at this time and is difficult to see on the scan. Yay!
So, I have finally seen Dr Birrer this past week in Birmingham. I am so glad that I went and now have a second opinion "support system". He has suggested that i may start on avastin/cytoxin as avastin works in many ways like the Ifos and is far less toxic. I have no hope for cure but much hope for more time in this world.
To any of you whose doctors feel that regular scans are not appropriate... they are wrong. Clearly, regular scans are appropriate for 2 years if you are hoping for a cure. This cancer got into my nodes even though it was a stage 1.
I am still here, feeling pretty good, and want everyone to feel that there is a hope for tomorrow. And I feel good!! thanks, Linda Denne