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Kathy
@wiltke
Eminent Member
Joined: Dec 29, 2017
Topics: 0 / Replies: 42
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RE: Surveillance after NED

Hi Katherine, I heard back from one of our consultants who noted that the different options you mentioned are considered to be within the standard of...

5 years ago
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RE: Video second opinions with Dr Birrer

Hi All, We are very excited to be able to offer this service! We have the link to the second opinion video consultations on the front page of our web...

5 years ago
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RE: Surveillance after NED

Hi Katherine, I would suggest that you make an appointment for your mom for a second opinion with another gyn oncologist who has experience with this ...

5 years ago
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RE: Referrals of GCS specialists in Spain???

Hi Maria, Dr. Birrer suggested Antonio González-Martín at Clínica Universidad de Navarra. Let us know how you make out. Kathy

5 years ago
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RE: Hair coloring

Hi Betty, I hope some of our forum community will reply with their personal experiences. I found the following information at Cancer.org, which is pa...

5 years ago
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RE: Stage 4B treatments / Relation between NF1 and Uterine Carcinossarcoma

Hi Manuel, I'm so sorry to hear of your wife's conditions. I am passing your questions along to one of our physicians and will reply to you privately ...

5 years ago
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RE: Very quiet

Hi Brenda and Ann, Thanks for asking about our efforts at The GCS Project. Recently, we had news from the researchers at Mass General and University ...

5 years ago
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RE: can you share your experience with ifosfamide? can we have a general discussion?

Hi Linda, This group understands all too well the anxiety and the "new normal." A little followup on your questions/concerns... Cytoxan (cyclophos...

5 years ago
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RE: can you share your experience with ifosfamide? can we have a general discussion?

Hi Brenda! Thanks for sharing your good news! It's wonderful to hear that things are under control and that your oncologist is pleased with your respo...

5 years ago
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RE: Is GCS Hereditary (from UK)

Hi Tara, I can understand your concern. As you've experienced with your mum, this is an aggressive cancer, but it is a rare disease. I shared your ...

5 years ago
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RE: Call for referrals for our GCS Specialists Directory

Hi Milana, I'm sorry to hear about your mother-in-law and hope that she is able to get a second opinion soon. It's a difficult time, but we hope that...

5 years ago
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RE: My weird and odd diagnosis (sorry if long!!)

Hi Kathy, It's hard to imagine what you are going through after such a difficult time getting a diagnosis. It has to be overwhelming. Linda put thing...

5 years ago
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RE: can you share your experience with ifosfamide? can we have a general discussion?

Hi Linda, I'm happy to hear that ifosfamide is shrinking the lung tumors! It is difficult drug, but such good news that it is working! I hope that ...

6 years ago
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RE: Financial Assistance-Immunotherapy

Hi Suzanne, I shared your post with Dr. Birrer. He noted that Merck has a compassionate release program and suggests that Karen switch to pembrolizuma...

6 years ago
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RE: Stage 1A treatments

Hi Linda, It's so good to hear from you! And such great news that the Ifos is reducing the lung tumors! Thanks so much for sharing your first-hand exp...

6 years ago
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